PokeVideoPlayer v0.9-rev1 - licensed under gpl3-or-later
Views : 373
Genre: People & Blogs
Uploaded At Apr 3, 2023 ^^
warning: returnyoutubedislikes may not be accurate, this is just an estiment ehe :3
Rating : 5 (0/40 LTDR)
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User score: 100.00- Masterpiece Video
RYD date created : 2023-04-04T06:22:11.028085Z
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Top Comments of this video!! :3
This is something I hear from people close to me, even, and I am just speechless when it’s said.
I usually say nothing, but it 1) it feels like a minimizing of my symptoms and hurts my feelings and 2) burns me up because they have no clue what it is like to have a combination of symptoms all at once and to have gone years now through a frustrating diagnosis process.
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I’m so happy you’ve been able to get out hiking it feels so good for the soul we manage our steps. That’s fabulous! Disregard the lady though it’s frustrating to hear comments like that. The “oh I’m tired too” If only going to bed earlier one night would help. All the best in gratitude and appreciation for what we can do ❤
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People I see in the shops think I have had a knee replacement. When I explain I have transverse myelitis in the setting of MS, they usually tell me of people they know in our area with MS. Usually when people find out, they tell me I look really good. Then I never know what to say so I just thank them.
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I began following your journey years ago as I was being tested for MS. For me, my diagnosis ended up being FND vs MS, but I continue to follow your story as your strength and openness - I admire and draw my own strength and courage from. Thank you for helping so many come to terms with the unique-ities in our own lives!
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Initially that would have made my eye twitch too!
I believe a lot of people have body pain issues. These can include illnesses such as, chronic fatigue, certain movement disorders and fibromyalgia.
I hope her encounter with you, helps her seek some answers surrounding her health.
In saying all of that, I know exactly where you're coming from. I was watching a TV programme with my friend and her mother many years ago. An old lady who had passed away, was found to have a fossilised baby in her womb.. my friend's mother piped up and said, that's probably what's wrong with me because I have pains in my stomach😂
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It depends on how they ask what I say. I always tell them to get tested for one reason MS does mimic other illnesses and 2. I guess because I was misdiagnosed for 30 plus years I didn't find out I had it til I moved to Ireland to be with my husband. Started having symptoms double vision and walking very weird. Went to hospital emergency room, and after being poked in the back ,mri finally got my diagnosis. was 45 then 59 now and it has been a lonely few years.
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Being recently diagnosed its haed for me to not be sarcastic back at them because some people don't either really understand or just are plain dumb. I get kinda defensive because it is such a hard blow. Just like 2 weeks ago the eye dr i went to took ut as a joke that i have ms. Im going for a second opinion because i am dealing with black floaties and blurred vision
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Unfortunately, so many symptoms can be a multitude of things but it never hurts to get tested. Sometimes even if they aren’t causing pain. As a child, I hated rollercoasters because the rush of blood to the head from any upside down loops would be way too much for me and would often tingle at the back of my neck. Turns out that’s a common symptom, but I never said anything because it didn’t hurt. So moral is: just because it doesn’t hurt, doesn’t mean nothing is going on. If something feels unusual, even if not painful, tell your doctor.
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Commenting as one who has not been diagnosed with MS but having similar symptoms and questioning, I think it’s relatively easy to just assume one has ms when they have ms like symptoms when you don’t understand how those symptoms are so similar to other things like migraines for example. Migraines sometimes present with some ms symptoms. With concerning symptoms people generally assume what is, in their mind, the worst possible diagnosis.
Then on the flip side, it’s human nature to when you see others struggling in similar ways and are a little more in tune with that struggle, whatever struggle that is. In this case it would be folks with ms recognizing ms in others.
As for me, I’ll probably have to end up in a wheelchair in order to get diagnosed. I’ve been a medical mystery for 3 years now.
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@Eddies186
1 year ago
Lol 😅 get tested . Years ago way before i got MS i had a lady ask have i ever had a scan for MS she had MS i wasnt feeling any of the symptoms was really energetic and active so many times years later i wondered so many why she asked like was i showing symptoms than or was it a MS 6 senses Now i see people that R showing the very earliest signs i just wanna ask have u ever been scanned but i do to this day wonder what she saw .the earliest sìgns R symptoms of so many thing
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