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YouTube Comments - 109 Comments
Top Comments of this video!! :3
Followingā¦. Perimenopause for the last 4-5 years and it has been a nightmare. Everything is harder. And nobody is talking about itā¦.. so thank you.
10 |
I had to have a hysterectomy because my second one messed up my insides, which sent me into menopause, and estrogen made me very sick. Iāve been on testosterone for two years. I have extra hair now most notably on my face, but my god are my moods amazingly stabilized. Iām not suggesting this move is for everyone by any means, I was just never attached to a gender one way or the other so I was just good with whatever kept me with my kids the longest.
27 |
So here's some info: progesterone tends to have a positive effect on sleep (falling asleep and sleeping deeply). It can also have a positive effect on joints and sometimes ob mood stability.
However, here's some more interesting info: some people are intolerant to it! That can be from an early point in their life (which may, in many cases explain PMDD), but it can also happen later, for example after a birth or during menopause.
This may result in your progesterone driving you crazy, causing severe depression or severe rage (whether or not you show it or bubble it up inside.)
Testing various forms of progesterone can help, but with actual intolerance, one will find that it won't work to solve the issue at all.
One solution for those of us that are menopausal is indeed, a hysterectomy. Without a womb it is safe to use just estrogen and there's no need for continued progesterone (because no more increased risk of cancer) if the side effects are too much.
Note that this is a big operation and whether progesterone is the problem should first be well researched with a doctor of course!
Estrogen has been linked to help with executive function in the brain. It has been linked to a very positive effect as a mood stabilizer and help with memory and focus in (AFAB) ADHDers.
I suggest researching 'progesterone intolerance' online, as well as looking up Prof. Sandra Kooij. She's one of few people in the European area highly interested in ADHD in women and the effect of hormones on neurodivergent brains.
She has a bit of interesting stuff on YouTube.
Your video is indeed incredibly niche but it resonates and is a subject that very much needs more attention!ā¤ thank you!ā¤
23 |
Thanks for making this video. I want to know more about this. I've noticed premenopause has made ADHD much worse and I'm concerned. I'm skeptical of hormones but may need to do something.
14 |
Menopausal neurological experience landed me in a mental health community clinic attempting to stop a full-on crisis. 3 years of relearning myself and what to do for my body later, my brain and body are better at getting along and communicating. I had no estrogen register from labs. My doctor suggested one month of taking evening primrose oil supplements to see if it increases my estrogen. If not, we will start hormone replacement therapy. I was also told there's an over the counter progesterone. Good luck to all of us smoothing out our chemical imbalances.
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Whoa š¤Æš¤Æš¤Æš¤Æ you just broke me š this is the first time Iām hearing the progesterone bit and you just explained 5yrs of my life š¤Æ
10 |
YES. But, one prescribing doctor realized, āOh, you donāt need progesteroneāyou had a hysterectomy!ā
The progesterone made me insaneāalmost worse than the whole launching into surgically induced menopause at 29 was. And, to boot, my ovaries decided to start producing minuscule amounts of estrogen again 7 years post-hysterectomy (so not total-failure of the ovaries like I was told prior), so Iāll get to go through all that again whenever my body decides itās time for *second* menopause.
So fun.
I wish I had help to give. But, I can confirm that some of us are extremely sensitive to progesterone, and itās a nightmare.
3 |
I just watched a YouTube video from Stanford where the professor (Robert Sapolsky) was explaining that certain ratios of estrogen to progesterone can create higher risk for depression in women, so this really puts that into context. Thank you for sharing
6 |
Whoa, this is me totally. It's been so insane for me and absolutely heartbreaking and exhausting, for me and my family but now I'm understanding better and talking to my hubby and family so masking attempts to be 'normal' don't cause me to have anxiety attacks. I late diagnosed at 46 this spring and I'm just trying to get my sh*t together but also realising it's ok if I can't some days, like today. I just slept and chilled, guilt-free. I'm definitely not pushing pharmaceuticals but when I didn't know what was going on an sertraline didn't work, and then HRT didn't completely work (not for the emotionally dysregulation anyway), when I finally realised I have ADHD and got a diagnosis from a psychologist and psychiatrist... One prescribed me Lamotrigine, which is supposed to be for bipolar and I was super scared to take it, but you know what? Within a day I felt like myself. For the first time in maybe 10 years!!! I couldn't believe it. It's not some miracle drug, if you don't look after yourself live is still hard, but besides my other ADHD issues, it has been an absolute game changer for me. I talked to a second psychiatrist about how amazing it was, and they said yeah, it helps for things like emotional dysregulation. Like I said, I'm not pushing anything, but for anyone going through the wild and challenging mix of being (or realising you are) neurodivergent and dealing with perimenopause or menopause plus in my case very young children (eek!)... The struggle is real! I definitely wish I didn't need the progesterone part... I will look into the 3-month idea because the hormones really affect me. Big hugs!
1 |
hormone imbalances are ROUGH! I haven't had this exact issue as I'm too young, but I had thyroid cancer twice and had a ton of these problems when all my hormones went wackadoodle from it. š„“ (I'm good now!) I feel so much for you, I hope it gets easier, or at least you can stumble through the progesterone times with minimal issues šš
13 |
Yes. I've had to wean myself onto progesterone, original HRT was all kinds of wrong for me. Now under a specialist - taking things cautiously.
5 |
Yes yes yes to all...I'm currently experiencing all those "what's the point". I say currently but I mean this has been going on for few years on and off.
It's horrendous tbh...I recently doubled my oestrogen, haven't considered the impact of progesterone. Ive taken them both together, but honestly life hasn't been worth living for a long time. š¢
4 |
Menopause broke My brain and led to me getting dyslexia, adhd, anxiety, dyspraxia and ASD diagnosis . I relate to everything you've just said. I got to the point where I experienced complete adhd burnout, and my brain was so fast I could barely finish a sentence, hold a thought in my mind for more than a second, and had horrendous, life-stopping sensory overload. But the story isn't all badā¤: there are many things we can do to improve our well being. I'm happy to say that after extensive research into neuroplasticity, neuroscience and mind- body techniques, and by forming new daily habits, I feel and look 20 years youngerā¤.
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As a perimenopausal AuDHDer who is uncertain whether I should try HRT, there's so little information out there, even just anecdotal information. This is a tremendous help. Thank you!
4 |
I had fibroids so went into sudden chemical menopause (after a cancer scare and covid times) six months of zoladex made me a mess. Autism and adhd symptoms off the charts. I had pmdd and adenomyosis so periods were terrible anyway. So glad to have finished them. After a few months i tried HRT which was ok as such but my boobs grew absolutely massive! I called it second puberty but it was not fun. Came off hrt and the boobs decreased hoorah. Went on menopace max as advised by gynaecologist. Two years later my thyroid is high. Turns out after genetic testing i cant tolerate one of the ingredients so ive been poisoning myself. š Now taking half dose and retesting. One thing after another
2 |
Iām autistic but not ADHD. I had my last period when I was 52 so I have been post-menopausal for 14 years now. My moods became better because no more PMT. I didnāt really notice anything except for the hot flushes which were annoying but fortunately I never sweated with them.
I still get them, but they are not as bad as they were years ago and only really bother me in summer because heat triggers them. In winter I get maybe one or two a day and they are milder. I refused HRT for them because of the potential dangers regarding breast cancer and the other potential side effects, so I told my doctor I would rather weather the hot flushes.
I lost weight during, and post menopause and my metabolism became faster. Pre menopause I was about 58 kgs and these days I only weigh about 43kgs. I have gradually got smaller over the last 14 years. It seems to be a pattern in our family to become leaner as we age though so donāt know if itās anything to do with menopause.
2 |
Iām not quite yet, but ty for the warning. If the progesterone sends me mental, Iāll know itās not just another Tuesday ^^
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Thank you ella for all your useful and interesting content on being neurodiverseā¤
3 |
I felt like that when they put me on HRT with mini pill. Felt a lot better on a higher dose micronised progesterone instead. Now nervous as just changed to a lower (but continuous) dose.
3 |
@RadishTheFool
5 months ago
Not at menopause just yet, but my experience with progesterone has been the polar opposite: it regulated my hormonal imbalance, and made both my heart and ADHD medication work SO much better. It literally saved my life. After a lifetime of struggle and ever decreasing life quality, I can finally start living in my forties. And it took me my entire life to find someone who understood the close and complex relationship between ADHD, heart issues, and hormones. So yes, please don't just interpret this video as "this hormone good, that hormone bad," but as "things get so much trickier when you're neurodivergent, and almost no one will be equipped to help you with it." My specialist is ADHD himself, by the way, and it makes a world of difference. I wish that was something we could look up about medical people.
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