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RYD date created : 2024-06-24T21:35:33.801708Z
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YouTube Comments - 52 Comments
Top Comments of this video!! :3
I work for the NHS and since the beginning and even now, our manager has been told its more to do with the below:
- the availability of the necessary āingredientsā /resources to actually make the medication
- the logistics of distributing this to the necessary areas
Basically the way me and my colleagues have understood it is, since Dec 2022 when Brexit was finalised. The manufacturers have not been able to get the right chemicals etc, to make the drugs and in turn, distribute them across Europe and wider areas.
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Here in Croatia we don't have a shortage (at least so far!), but we did have a change in regulations which made my meds completely inaccessible, and it took me 6 months to be able to get them again (bcs my doc went out of her way to find out how).
And then 5-6 months after that, she switched clinics (or smth) and wasn't able to get me the prescriptions anymore, so it took me another 4 months until I was able to have my meds again.
I had also seen different doctors who either said "adhd gets resolved by adolescence" or "I have never heard about anyone prescribing narcotics for adhd". I kid you not.
I don't function without them. I'm self teaching atm and without meds it's just not happening. My depression got back and it hit hard.
I had also tried a different type of medication, and that one made me even worse.
It's fun. š (/s
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Epilepsy meds have issues at times and that is a life saving drug. It's is always to do with getting the raw ingredients to make the medicines, which slows down production, as well as people needing them. I'm not saying its more important, but it's what happens. Even calpol is having shortages too. I guess if we go through the full medicine list many will have shortages. Hope all can get the meds they need and the shortage gets resolved.
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I feel sorry for the pharmacists š
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I started on medication in January this year. They let me titrate to 54mg which took about a month and then once Iād finished a week of 54mg they told me there was no more medication and they didnāt know how long itād take until I could go back on. Asked for updates but every time they said they didnāt know. Going on and coming off was a nightmare because Iād felt what it was like to function and then had to go back to unmedicated me.
Fast forward to 2 weeks ago, final two weeks of my undergraduate degree, and I was able to go back on medication (without titration) which was a nightmare for side effects but is now relatively stable and the difference in functioning is amazing. Iām now trying to request my next prescription but havenāt heard anything back so far so no idea if Iāll be able to stay on medication.
I think the back and forth is so damaging because you get to experience what itās like to have task initiation and concentration and get your life together and then you have to go back to nothing and figure out how you even managed without š
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Another thing that I have noticed is how the different brands work differently and have different effects- even though it's the same medication. How simple things like: binding, coating, and shape can make a difference to how it gets to work. Particularly the way they work towards the bedtime, when it starts to go into the half life. They all work differently for me x
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It's not just ADHD meds. Many meds are now unavailable, we've had to substitute. find work arounds. World shortages, no hint of when it will improve.
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I wound up realizing my current meds are not right for me, tried swapping, and now I canāt get any that my psych wants me to tryā¦ but my old one has stopped working for me! I just get stuck instead of focused
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It's the same as Ozempic. It's fashionable. Doctors prescribe it to anyone with $$$$$.
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It's been a nightmare. Still struggling to get the medication, or I'm able to do so but only at the cost of exhaustively checking different pharmacies and dealing with horribly toxic NHS pharmacists/psychos.
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This isn't true. America limits the amount of production. It's a restricted supply problem. The companies managed to vaccinate the entire planet, they could make the meds if they were allowed and/or were motivated enough. There's also a chance that limited supply keeps prices at a point. This last bit is just a theory.
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Iāve actually not had any problems getting hold of medication since the latter part of last year (Elvanse) and so far my younger son hasnāt had any issues with Methylphenidate, but I understand that there were still some difficulties with supply of his type of modified release medication when he started it at the beginning of the year.
Looking at the information I could find via manufacturers and government agencies etc. it seems to be multifactorial. Yes, there is an element of increased demand due to people being able to get a diagnosis that has gone unrecognised earlier in life and better recognition in younger people too, but there are effects from the pandemic still hanging over too. While I am not a Brexit fan and am sure that there is an element of this with the supply problems, places like the US, which are entirely unaffected by Brexit, have also had issues. There are also particular issues with certain drugs like Elvanse, which has just had the patent expire in various countries, allowing potentially cheaper generics, but meaning that the original manufacturer has little motivation to ramp up production. This leaves patients in limbo until generics are available and approved. As usual it seems to be a combination of factors, rather than one problem alone.
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As a biochemist I can vouch itās honestly the click of a finger to triple product of any medication
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Iām always worried when it comes time to refill my script because I donāt know if my local chemists are gonna be in stock and I usually have to travel around the metro Melbourne to find a bottle and I thought that was stressful! Now Iām grateful I can still get it at all!! ā¤ā¤ā¤ā¤ā¤ā¤
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All the problems I can find cited online also apply to The Netherlands, where I live. Yet we don't have a shortage. What's going on? There must be yet more reasons specific to the countries that do struggle.
NB We did have a shortage of antipsychotics a number of years ago. That's really scary, because going cold turkey on those can give life long psychiatric complications.
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Iām currently pursuing a degree in Creative Writing and have consistently used Vyvanse throughout high school, community college and my time at this university. Itās seriously turned my life around and the feeling of being able to lock in and do my work is amazing. Imagine my abject horror to learning that not only are 5 pharmacies near my apartment are out of stock and canāt refill my meds, but everything according to them is on indefinite back order. I gotta write a spec script this monthā¦šš
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Iām having trouble getting it for my Daughter I now have to try and get her another appointment with the psychiatrist so she can switch her meds to something else because the medication she is on for her ADHD is just not available anymore
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I have been wating 3 years to get diagnosed with AD HD
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What happend the goverments don't want people awere and functional , wtf . What is happening ?
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@zenmeimori
2 months ago
I don't know how it works in Europe/UK, but in the US, stimulant meds are a Class 2 drug, so the amount manufactured each year is limited by the government, and they base how much should be made in the next year based on how many prescriptions for it were written in the previous calendar year. So, if each year more and more prescriptions are written, that means there will always be a shortage of products. It sucks, and impacts pretty much everyone who relies on these medications.
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