01:01:58

Cerebral ALD in Adults

01:04:41

Adrenal Insufficiency Starter Pack: Basics for Newly Diagnosed ALD Families

01:03:59

From Natural History to Clinical Trials: A Family Guide to Engaging in Research

43:22

Bearing Witness: New Technologies and Old Trauma

39:01

Update on Continued Efficacy and Occurrence of Myelodysplastic Syndrome in the Gene Therapy Trial

35:12

Brain Engraftment, Biomarkers, and Transplant

45:21

Multiple Cases of Mosaic X-Linked ALD Identified through Newborn Screening

46:03

Patient Experience Panel

13:01

Annual Meeting Welcome

24:20

Burden of Illness: Overview for Men with AMN

33:53

bluebird bio – Gene Therapy Update

13:08

SwanBio Investigating AAV Gene Therapy for AMN

21:28

Minoryx Therapeutics Leriglitazone Update

12:16

Propel: A Phase 1/2 Study to Evaluate the Safety and Efficacy of IT AAV9-ABCD1 GT in Adults with AMN

44:46

Interim Results from Nexus Study of Leriglitazone in the Treatment of Cerebral ALD

27:11

Int'l Validation of Meaningfulness of Postural Sway and Gait to Assess Myeloneuropathy in ALD

58:33

2022 ALD Connect Emerging Investigators

18:02

Patient Learning Academy - Welcome & Overview of ALD Connect

45:00

International Partner Updates

49:19

The Grey Zone: My Genetic Test Comes Back 'Variant of Uncertain Significance' – Now What?

15:55

IV Administration of Mesenchymal Stem Cells for the Treatment of Cerebral Adrenoleukodystrophy

50:34

Ask an Expert: Clinical Panel

01:02:22

ALD Associated Trauma

47:10

Transitions in ALD

32:54

ALD Below the Belt

19:22

Clinical Trials for Women with ALD

11:09

ALD Connect Awards & 10th Anniversary Celebration

15:49

Development & Validation of the Adrenoleukodystrophy Health Index ALD HI

07:37

Exercise and Neurodegenerative Disease

01:19:03

ALD Siblings - What works, what hurts

01:01:46

Travel Considerations for ALD/AMN Patients

01:05:47

ALD Connect Webinar: The Grey Zone

01:00:12

Physical Therapy Considerations for the Management of Adrenoleukodystrophy

39:07

Adaptive Exercise Panel – Moderated by Ben Lenail

32:22

Adrenal Insufficiency – Dr. Jonanlis Ramirez Alcantara and Dr. Swathi Sethuram

05:03

ALD Connect Ambassador of the Year Awards

23:23

Burdens & Joys of Caregiving – Jesse Torrey

25:07

Ask the Experts

04:19

Closing Remarks - Patient Learning Academy – O'Sullivan-Fortin

30:17

Fall Prevention in ALD & AMN – Jennifer Keller

42:22

Gene Correction in HSCs Restores White Matter Microvascular Function in CALD - Dr. Patricia Musolino

34:16

Gene Therapy Panel – Ask an Expert

18:25

GLIA CTN: Current Initiatives & Next Steps – Sherbini

22:25

Human ALD Brain Organoids – Roberto Montoro Ferrer

45:07

Industry Panel - Facilitated by Dr. Amber Salzman

29:49

Insights on a Zebrafish Model of ALD – Dr. Quentin Raas

22:32

International Recommendations for the Management of X-Linked ALD – Dr. Marc Engelen

49:20

Patient Experience Panel – Moderated by Greg Benton

33:07

Lipidomic Biomarkers in Plasma Correlate with Disease Severity in X-Linked ALD – Yorrick Jaspers

23:24

2022 ALD Connect Patient Learning Academy Welcome & Opening Remarks – Kathleen O'Sullivan-Fortin

26:13

Mouse Models for Peroxisome Research – Dr. Joe Hacia

15:34

ALD Connect Ann B. Moser Award

34:18

The Neurogenic Bladder in ALD – Dr. Cristina Sadowsky

17:00

Towards a Brighter Future: Innovation, Research & Progress in ALD – Dr. Florian Eichler

48:00

Variants of Uncertain Significance: Friend or Foe – Dr. Stephan Kemp

31:20

Updates in Imaging in Cerebral ALD – Dr. Eric Mallack

29:38

Vitamin D Study – Dr. Keith Van Haren

49:58

Wearable Sensors to Assess Sensory Motor Function in AMN – Dr. Amena Smith Fine & Jennifer Keller

15:44

2022 Annual Meeting Welcome & Overview - Dr. Florian Eichler & Kathleen O'Sullivan-Fortin

30:15

Women's Studies in ALD – Natalie Grant