54:15
FH Awareness Day 2024 - Presentation of the Campaign Toolkit
58:51
FH Awareness Day Kick-off meeting for the 2024 Campaign
01:02
Sara Otter - Judge Video
15:18
Masterclass in CVD/CVH Advocacy 2024.
01:44
Why do we need HoFH Awareness Day? Endocionologist´s perspective from Dr Tavintharan Subramaniam
00:32
Why do we need HoFH Awareness Day? Mother of HoFH Patient from Lebanon
00:51
Why do we need HoFH Awareness Day? Cousin of HoFH Patient Chantale Khoury from Lebanon
01:58
Why do we need HoFH Awareness Day? Parent of HoFH Patient Elsie Botes-Lashmar from South Africa
00:51
Why do we need HoFH Awareness Day? HoFH patient Chyrel Lichaa from Lebanon
01:10
Why do we need HoFH Awareness Day? Emil Kakkis, CEO of Ultragenyx
01:20
Why do we need HoFH Awareness Day? HoFH Patient Maria Nassif from Lebanon
00:48
Why do we need HoFH Awareness Day? HoFH Patient Marwa Sadeek from the UK
00:54
Why do we need HoFH Awareness Day? Parent of HoFH patient Zoha Lichaa from Lebanon
01:05
Why do we need HoFH Awareness Day? HoFH Patient and Pharmacist from Syria
01:07
Why do we need HoFH Awareness Day? President of Iraqi Lipid Clinics Network
01:18
Why do we need HoFH Awareness Day? Global Patient Advocacy Group's Perspective
01:10
Why do we need HoFH Awareness Day? Clinician's perspective from Afghanistan
01:08
Why do we need HoFH Awareness Day? Dr. Sabeen Abid Khan from Pakistan
01:10
Why do we need HoFH Awareness Day? From President of Ethiopian Society of Internal Medicine
01:05
Why do we need HoFH Awareness Day? Clinician's perspective from Tanzania
01:08
Why do we need HoFH Awareness Day? Patient's and Healthcare Professional's perspective
00:48
Why do we need HoFH Awareness Day? HoFH Patient Ambassador's Perspective
01:20
Why do we need HoFH Awareness Day? Patient Ambassador Perspective
00:48
Why do we need HoFH Awareness Day? Young HoFH Ambassador's Perspective
00:33
Why do we need HoFH Awareness Day? Young HoFH Ambassador's Perspective
00:43
Why do we need HoFH Awareness Day? Fitness coach's perspective
01:43
Why do we need HoFH Awareness Day? Clinician's Perspective
00:58
Why do we need HoFH Awareness Day? Caregiver's Perspective
02:44
How to create your social media frame for the HoFH Awareness Day
43:47
HoFH Awareness Day Campaign Kick-off meeting 2024.04.25
01:00:19
Ask me anything about Lp(a) | Webinar
01:02:57
Make it or Break it: Communication in Rare Diseases | Rare Disease Day Webinar
01:57
Helga's story | Rare Disease Day
03:06
Scott's story | Rare Disease Day
02:06
Avery's fight | Rare Disease Day
03:30
Manfred's Story | Rare Disease Day
18:07
Living with HoFH | Rare Disease Day
11:34
FH Europe Foundation Advocates calling for a Cardiovascular Health Plan for Europe
23:03
Familiar Hyperlipidaemias – everything that connects us
21:05
A Cardiovascular Health Plan for Europe - the political opportunity for Change
16:21
Lp(a) International Taskforce - the catalyst Project
22:48
Registries – from individual data sets to building the bigger picture
25:23
Health economics and cost effectiveness of screening:a powerful advocacy argument for implementation
16:48
Precision Health: the role of the social and behavioral sciences in advancing implementation
15:13
Women's data – the missing piece in women's health protection, disease prevention and care
11:31
Advocating for a Cardiovascular Health Plan for Europe - FH Europe Ambassadors (the Rijkens)
55:23
FCS Tips and tricks for cooking without fat
58:43
FCS: Latest updates and patient perspecitves on unmet needs
58:02
Under-diagnosis of Lp(a):How patients and healthcare professionals can work together for a change
01:01:50
HoFH: Latest updates and patient perspectives on unmet needs
01:02:12
FH early screening saves lives and is cost effective! Is this enough?
01:01:21
Misdiagnosis and Gender Bias in Women with FH
56:47
Updates from the EAS FHSC - the global registry.
00:53
How to watch a video with subtitles in your local language
56:11
Beat the odds of an early heart attack: How to communicate Lp(a) risks to your doctor effectively.
01:00:32
FCS - Living on max. 20gr of fat a day
01:17:35
Workshop 2: Becoming a FH Europe Ambassador - Expectations and rewards
01:40:56
FH Europe Annual Network Meeting - FH Paediatric screening Workshop
01:02:08
FH Europe Annual Network Meeting - Political Session
32:38
FH Europe Annual Network Meeting - Scientific Session
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About
Improving Europe-wide awareness, understanding, and access to diagnosis and treatment of inherited lipid conditions.
FH Europe Foundation (FHEF) represents the needs of people with familial hyperlipidaemias. Covering both the most common genetic and inherited conditions in the world and the rare conditions, the Foundation acts in the area of advocacy and patient support, drives public health policy improvements and collaborates progressively with leading European and the EU institutions – like the European Commission, the European Parliament and many other EU stakeholders.
FH Europe Foundation is the next stage in the evolution of FH Europe (fheurope.org), the European Network of FH patient organisations. It was initiated in 2015 by a group of leaders of HEART UK, FH Sweden, FH Portugal, FH Norway and FH Austria and supported by a volunteer Steering Group, with an administration centre set up at HEART UK.
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